The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.
Transmitting Baba
Tribu
My Life Directed by Nicolas Winding Refn
Joe Swash: Forgotten Young Dads
My Child
Being Mum with MND
A Conversation Between Parents
Carnations
Mama Rainbow
I Love You I Miss You I Hope I See You Before I Die
Nos oeufs au congélo, le temps de la réflexion ?
Lesson from our garden
